Ron Sullivan wasn’t diagnosed with NF1 until he was 36, when he and Kathleen had their first son, Mark who was diagnosed with NF1 at 8 months old. Aaron was diagnosed with NF1 at 6 months old. Despite 3 out of 4 family members battling NF, the Sullivan’s are positive, upbeat and find the fun in every situation.
The Sullivan’s love exploring and trying new things so they chose to visit a park of the country they had never seen, New England. They checked off many items from their bucket lists including touring Fenway Park, touching a shark, going for a boat ride and viewing the classic light houses of New England.
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